I was due with my first child in September 2009. During my prenatal appointments my husband and I noticed that the baby’s heart rate was always at the high end of what the doctor considered “normal”, but it was our first baby so we trusted the medical staff that said everything was okay.Read More
Hi, my name is Amanda and I have been living with a heart disease since "01". I think "Surviving" would be a more appropriate word in every sense though.Read More
My wife, Tina, received a heart transplant in 1992 because of complications with Restrictive Cardiomyopathy. She is 22 ½ years post-transplant and doing well.
In 2002, before trying to get pregnant, we asked her cardiology team if her RCM could be transferred to our child. The answer was a definitive “No”. At that time, RCM was not known to be an inheritable condition.
The details of the day our son, Luke, was diagnosed with RCM will live in my memory as if that day was yesterday.
We would like to share that day with you.Read More
To read this story in Dutch, click here.
At a young age I was already aware that my mother was different to other mothers. She was always tired, never played tag or football and when we went shopping she would often stop to look in shop windows. To me that was normal family life. When I got older my mother explained that she had a weak heart. Everything became tragically clear when my bother suddenly died. I was 13 and he 17.Read More
In March 2007 my life changed immediately as my dreams and aspirations were taken away and I struggled to come to terms with what I labeled the “new and ordinary me”. My entire life revolved around sports participation from a young age and occurred from the moment my parents sent me to boarding school in search of a better education but instead was found to have the opposite affect as I wanted to pursue a professional career in rugby union.Read More