11th Annual International SADS Foundation Conference, October 26-28, 2018, Ann Arbor, MI
Affairs of the Heart: Living with Hypertrophic Cardiomyopathy, March 30, 2019 New Haven, CT. Registration to begin in December.
Affairs of the Heart: Living with Hypertrophic Cardiomyopathy, June 15, Durham, NC. Registration to begin in April 2019.
Living with Cardiomyopathy: A Family Conference, October 2019 (Date and location TBD) More details to follow
Children with heart failure from dilated cardiomyopathy are seeing a dramatic improvement in outcomes in recent years, Science Daily, February 5, 2018
Hypertrophic cardiomyopathy: Who has an inherited risk? Harvard Health Publications, August 2016
Sudden Death in Hypertrophic Cardiomyopathy Rarely Associated with Exercise, ESC August 28, 2016
MyoKardia Publishes Article in Science Demonstrating That MYK-461 Prevents and Reverses Disease in Genetic Mouse Models of Hypertrophic Cardiomyopathy, NASDAQ Global New Wire, February 4. 2016
Why Should Cardiologists Consider Genetic Testing for HCM, JACC: Heart Failure, 18 September 2014
Molecular Cause of Heart Condition Identified by Researchers, Stanford Medicine News Center, June 18, 2015
SHaRe: advancing the goal of effective treatment for cardiomyopathy, European Heart Journal, CardioPulse, Volume 36, Issue 19
Protein Structure Holds Key to Heart Muscle Disease, November 29, 2014
Stanford patient on having her genome sequenced: "This is the right thing to do for our family." Cardiovascular Medicine, Stanford News - July 8, 2014
New pill-sized pacemaker implanted in heart of UK patient, The Guardian (UK), June 9, 2014
The SHaRe Cardiomyopathy Registry is pleased to welcome our two newest Principle Investigators, Dr. John Lynn Jeffries and Dr. James Ware. Dr. Jeffries is Director of the Advanced Heart Failure and Cardiomyopathy Services at Cincinnati Children's Hospital Medical Center. Dr. Ware is Clinical Senior Lecturer in Genomic Medicine at Imperial College London and Consultant Cardiologist at Royal Bromptom and Harefield Hospitals. For additional information on Dr. Jeffries and Dr. Ware and our other Principle Investigators click here.
SHaRe is now on YouTube! Subscribe here for videos on cardiomyopathy treatment and research.
Listen to podcast on Patient Empowered Radio, where patient Wendy Borsari discusses SHaRe and the need for a Cardiomyopathy Registry: Click here to listen!
Check back here for more upcoming announcements on SHaRe, HCM and DCM