Clinical Research Studies: On being a guinea pig

Medical research has been part of my vernacular almost as long as I can remember. Growing up, I remember my mother routinely taking part in research studies, whether it was a clinical trial or a simple release of her medical records and lab results. My mother was being treated at a teaching hospital - one that was and still is involved in cutting edge research. Because of this, she was followed for her diagnosis of Hypertrophic Cardiomyopathy (HCM), in the hopes of better understanding the disease and maybe one day creating better treatments as well. For the same reasons, as a young child I was also followed at the local children’s hospital, although I wasn’t actually diagnosed with HCM until I was 25.

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