Scroll down to see full agenda and to register

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Free conference: Featuring top Cardiomyopathy specialists from Brigham and Women's Hospital and Boston Children's HOspital

At the Joseph B. Martin Conference Center,                   77 Avenue Louis Pasteur, Boston, MA 02115

If you're attending the conference from out of town we've secured a special rate ($229/night) at the Inn at Longwood Medical, 342 Longwood Ave. You can make your reservation by clicking here. End date for making your reservations is April 18, so grab a room quickly if you need one. 

 

 

The SHaRe Cardiomyopathy Registry is teaming up with the Brigham and Women's Hospital and Boston Children's Hospital,  and the Children's Cardiomyopathy Foundation, to put on a FREE conference for patients and their families, focusing on Dilated and Hypertrophic Cardiomyopathy.

 

Registration form found below.

*PLEASE NOTE: ALL ATTENDEES MUST FILL OUT INDIVIDUAL REGISTRATION FORM WHETHER PATIENT OR GUEST OF THE PATIENT. THIS IS THE ONLY WAY WE CAN HAVE AN ACCURATE COUNT FOR SEATING AND FOOD. 

Agenda Times and Topics

8:00 - 9:00       Check-In and Continental Breakfast

9:00 - 9:05       Welcome Remarks                  

9:05 - 9:25       HCM and DCM- what are they and how do we treat them?

9:30 - 9:50       Genetics 101- what do we know and what don't we know       

9:55-10:20       How Do I Talk to my Family                                  

10:20-10:35     Morning Break

10:35-10:50     What Can/Should I Do? Exercise and Lifestyle   

10:55-11:20     Too fast or Too Slow? Do I Need a Device or Procedure for my Heart Rhythm?

11:25 - 11:40   Research: Where are We Going?

11:45 – 12:15  Patient Panel

12: 15 – 1:15   Lunch

1:15 - 2:45     Breakout sessions

Breakout session topics

Pediatric Considerations

Genetic Testing – Understanding and Using your Results

Heart Anatomy

HCM Specifics

DCM Specifics

Exercise and Lifestyle

*Breakout sessions will each run for 30 minutes and repeat. This will allow all participants to attend three of the sessions listed above.

 

Fill out my online form.