Scroll down to see full agenda and to register

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FREE CONTINENTAL BREAKFAST AND CATERED LUNCH WILL BE SERVED. 

If you're attending the conference from out of town we've secured a special rate ($139/night) at the Sheraton Palo Alto, 625 El Camino Real for attendees. The hotel is a quick 3 minute drive from the venue. To reserve your room please call 1-800-325-3535. You must mention Affairs of the Heart/Stanford to receive the discounted rate.  

 

The SHaRe Cardiomyopathy Registry is teaming up with the Stanford Center for Inherited Cardiovascular Disease,  Myokardia, and the Children's Cardiomyopathy Foundation, to put on a FREE conference for patients and their families, focusing on Dilated and Hypertrophic Cardiomyopathy.

Featuring top Cardiomyopathy specialists from Stanford Health Care and Lucile Packard children's hospital.

 

Registration form found below.

*PLEASE NOTE: ALL ATTENDEES MUST FILL OUT INDIVIDUAL REGISTRATION FORM WHETHER PATIENT OR GUEST OF THE PATIENT. THIS IS THE ONLY WAY WE CAN HAVE AN ACCURATE COUNT FOR SEATING AND FOOD. 

Agenda Times and Topics

8:00 to 9:00     Check in and Continental Breakfast

9:00 – 9:05      Welcome Remarks

9:05 – 9:25       HCM/DCM 101 and the Hearts Electrical System

9:25 – 9:45       Navigating Risks*

9:45 – 10:05     Genetics 101*

10:05 – 10:20  Morning Break

10:20 – 10:45   Adjusting to changes during your journey

10:45 – 11:05   Psychosocial and LIfestyle*

11:05 – 11:25    Surgical and Device Interventions

11:25 – 11:45    Lisa Salberg of the HCMA

11:45 – 12:15    Research: Where we are and where we've come from

12:15 – 1:15      Round table lunch discussions

1:15 – 1:45        Breakout sessions 1

1:45 – 2:15       Breakout sessions 2

2:15 – 2:45      Breakout sessions 3

Possible Breakout Session Topics

Pediatric considerations

Getting Involved with Research

HCM Specifics

DCM Specifics

Device Therapies

Heart Anatomy (Actual hearts will be used during this session)

Supporting your loved one with an inherited CV disease

Creating a Heart Healthy Exercise Routine

Each conference participant will be able to select three breakouts to attend

*Starred topics above will be tandem talks with patient and clinician

 

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