A CARDIOMYOPATHY REGISTRY
The goal of the Sarcomeric Human Cardiomyopathy Registry (SHaRe), a first-of- its-kind effort, is to advance the understanding of hypertrophic cardiomyopathy (HCM) and dilated cardiomyopathy (DCM), two types of heritable heart disease affecting nearly 2.4 million adults and children in the U.S. and Europe.
SHaRe is a multi-center, international repository of clinical and laboratory data on individuals and families with genetic heart disease developed as a collaboration with several world-leading cardiovascular centers.
By building the world’s most robust database of its kind, cardiovascular geneticists and research-based cardiologists will be able to expand their knowledge base and generate fresh insights and research initiatives supporting the development of more targeted and effective approaches in the treatment of genetic heart disease.
Funded by research grants from MyoKardia, Inc., SHaRe brings together an expert group of experienced and knowledgeable cardiologists and geneticists from the United States, Europe, Australia, and South America with a passion for helping people with genetic heart disease.
Through our website and Affairs of the Heart patient conferences, SHaRe seeks to educate patients and family members about the scientific findings from the registry and about advances in the diagnosis, treatment and management of HCM and DCM.
To download our brochure, click here.
Listen to podcast discussing the benefits of a cardiomyopathy registry.
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PREPARING FOR YOUR VISIT
Take control: Get the scoop on how to prepare for your next cardiology visit here.
SHARE YOUR STORY
Browse personal stories from patients & family members of those with HCM and DCM, and even share your own story!
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International SHaRe Locations Around the World
Number of people (patients & their family members) currently represented in the International SHaRe Registry:
Sponsored by MyoKardia, Inc.